Information for GPs
- Information on Hypermobile Ehlers-Danlos Syndrome (American Journal of Medical Genetics)
- Royal College of Paediatrics and Child Health position statement on EDS
What to do if your patient comes with a self diagnosis of EDS
There are two National Diagnostic Centres for EDS - London and Sheffield.
EDS is very rare and the centres have produced this leaflet to help patients and professionals understand the difference between true EDS and Hypermobility.
For patients without internet access
Print off single sheet patient resource and signposting links.